Thursday, October 8, 2009

Spelling Test.......................

Never in a million years did I ever expect to have a child with Down Syndrome.
And never, when I was told that my baby was most likely going to be born with Down Syndrome, did I ever expect him to read, or write, play sports, or do well in school.

The day a geneticist told Mark and I the news, he painted a very sad, bleak, scary portrait, telling us all the things Ryan wouldn't ever be able to do. We mourned the son we would never have.

Well, thank goodness that doctor didn't know what the hell he was talking about - and the info he had was ancient!
Here's Ryan's spelling test from this week -

Oh, and did I mention that Ryan is playing soccer and baseball this fall? Basketball starts in January. All of which he loves, and plays great! He also started singing in the school chorus last week and was elected into the student council. Not too shabby for a kid I thought would never be able to do anything from the information that was given to me in the beginning of this journey.

This kid freaking ROCKS! He does everything any "typical" kid can do and then some! What a waste for us to have been so sad about "this" kid! He truly is an amazing human being just like his sisters. How sad it would have been not to know him..................

I'd love to go back and see that geneticist again one day. I would have only 2 words for him - "SCREW YOU!" lol

One thing I wish I was given by that jerky doctor the day I got the news was this:

(but of course if I was, then my handsome son wouldn't be on the cover! ;)

Please click on the link to read all of the words of wisdom from parents who now know better!
http://www.woodbinehouse.com/Soper_booklet.pdf

I think it's so important that every doctors office should have this booklet on hand to give out so that new parents finding out will know that this "diagnosis" is not the end of the world. I know it would have saved us alot of the heartache we first felt at the start.


8 comments:

Chris said...

Ryan does rock!! How could he not? Look who his mom and dad are?!

He's doing great. You should be very proud.

Unknown said...

How sad that the doctors think with such tunnel vision, I fell in love with that kid the moment I met him!!

Cate said...

I love hearing about Ryan and all his accomplishments. Yours is one of my "hope for the future" blogs.

(and we will definitely have to have a glass of wine someday. or even several glasses.)

Sharon said...

Yay, Ryan!! He is truly amazing.

Yes, Doctors have much to learn. A group of self advocates who spoke at this years NDSC Convention also spoke at the National Geneticists conference and the genetecists were blown away....hearing the self advocates interests, achievements, etc. Gave them a whole new view and hopefully will help them deliver the news of a Ds diagnosis in a more positive light.

Michelle said...

WTG Ryan! Awesome job!

Linda said...

I love how your pride shows through your words. Good job, Ryan!

Anonymous said...

the geneticist who we saw when binny was a whopping 48 hours old was the WORST medical professional we have ever dealt with. we call him "the ghoulish geneticist". i think you totally SHOULD send some info to the one you dealt with - drs need to learn to at least be impartial, and maybe maybe to be a little bit positive when dealing with parents.

ryan has already surpassed ME in the sports arena (and probably in the spelling one too!). he really does rock!

debbie

datri said...

Wow, that is so AWESOME!!!

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